Medically and neurologically, Jaxon's doing well, but still in the ICU. We've been able to take him off oxygen, wean him off steroids, and remove his external ventricular drain. We're currently not in need of an IV, but I use the word "currently" as Jaxon thought it would be fun to puke on his dad this morning. He's vomited the last two mornings and may be in need of a scenery change, some fluids... and a bath. His nausea and cough are nothing short of rough... is this related to his neurological progression? We simply don't know at this point.
We're hoping to move to the epilepsy monitoring unit today. This would be a welcomed change as the care will be more specific to Jaxon's case with neurologists at his side around the clock. The good news is he's at or right ahead of plan neurologically according to his neurosurgery team. Word of the wise, don't give my kid a neuro test and expect good results after an hour or two of sleep, first thing in the morning. As the day goes by, he will get better, stronger, and more willing to pass your tests.
Emotionally, this has been a rollercoaster ride that has already gone on too long, the operator has left the building and we're currently on the continuous loop. It's been tough for Mom and Dad to see him this depressed. He hasn't been able to flash his beautiful smile since surgery and can't understand why he's unable to move the left side of his body like he used to. The day-by-day mantra has changed to hour by hour, sometimes minute by minute.
At the end of the day, we're going to have good days and bad days. Dad is delusional, so we'll be ending this update for now, more to come soon. Love you all.
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